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Amadys
started
in 1987 as a self-help-group for patients with
blepharospasm (AMB) by Prof. H. Bigorre. Only in 1997 it changed
its name to Amadys and now also supports patients with all forms of
dystonia. Chairman since 2003 is Claude Michon
with a Board of 8 other elected members. The number of members is
now over 2000. A Medical Advisory Board of 20 specialists supports
Amadys. Brochures and a newsletter, published three times a year, are
available for members.
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