Chairwoman:
Virpi Ikonen
Roihuvuorenkatu 10 K 103
FIN-00820 Helsinki

Contact:
Liisi Niemi

eMail:  liisi.niemi@netsonic.fi

Web Site : www.dystoniayhdistys.com

When the group was formed, dystonia patients were affiliated with the Finnish Parkinson’s Society, which had already all the services required. In 1998 a separate Dystonia Society was founded with at present 547 members. There are a large number of regional  support groups in different parts of the country and patients, who have no access to any group, keep contact by telephone. A newsletter is published four times a year and, annually in September, ‘Dystonia Days’ are organised for  members.