Chairwoman and Contact:
Marjut Vannainen, Eräpolku 6
FIN-21530 Paimio
Tel. +358405108 479
Email: marjuthannele@kolumbus.fi


Web Site : www.dystoniayhdistys.com

When the group was formed, dystonia patients were affiliated with the Finnish Parkinson’s Society, which had already all the services required. In 1998 a separate Dystonia Society was founded with at present 547 members. There are a large number of regional  support groups in different parts of the country and patients, who have no access to any group, keep contact by telephone. A newsletter is published four times a year and, annually in September, ‘Dystonia Days’ are organised for  members.