Bye-laws of the European Dystonia Research Group 

 Bylaw 1   Membership
As stated in Article 6 of the Constitution.

Members shall at all times be required to uphold the goals and objectives of EDRG as detailed in the Constitution
Each ordinary member shall be entitled to attend the annual General Assembly and vote.
Annual Membership fees/dues shall be determined by the General Assembly and must be paid on a continuing basis unless the member submits a written resignation.
Non-payment of fees/dues following the receipt of two reminders from the Treasurer and after such fees/dues shall have been in arrears for three months, will be grounds for the Board to suspend the membership of the defaulting member, and propose termination at the next following General Assembly.

Bylaw 2      Procedures for membership
a) The Board shall decide on the admission of members as provided in Article 6 of the Constitution.

b) Membership shall be acquired after completion of the admission procedure and upon receipt of payment in full of the membership fee/dues for the current financial year.

c) Membership shall terminate by resignation or, where applicable, the expulsion of a member organisation under Articles 7 & 8 of the Constitution. The resignation must be sent in writing to the Secretary.
d) The membership year shall run from 1st January until 31st December.
e) Members who have resigned or have been expelled shall be required to pay the current year's membership fee/dues and shall be liable, pro rata, for any debts that EDRG has incurred on behalf of the said resigning or expelled member.
f) The Board may suspend the membership of any member who:
        i.     In the view of the Board, acts against the interests of EDRG or who
                damages the reputation of EDRG;
  
                 or
        ii. Who does not pay the amounts due to EDRG in accordance with these By- laws.
g) The expelled member shall have a right of appeal to the next General Assembly in person or in writing against the decision of the Board.  The decision of the General Assembly shall be final.

 Bylaw 3   General Assembly
a) The General Assembly shall meet once a year and it shall be called by the Board. 
b) The notice of such meeting shall be mailed not later than 30 days before the day of the meeting.  The notice shall include the provisional agenda as proposed by the Board.
c) At the General Assembly, any matter other than those on the agenda may be discussed and voted upon if at least one third (1/3) of the members present at the meeting request it.
d) The Board of Directors may convene an Extraordinary General Assembly for good cause, or following the request of at least one-quarter (1/4) of all members.  Such a request must state the grounds for calling an Extraordinary General Assembly and it shall include a provisional agenda.
e) At the General Assembly every member who has paid the annual membership fee/dues for the then current year shall be entitled to vote and shall so do in accordance with the provisions of Article 6 of the Constitution.
f) No member shall be entitled to vote at any General Assembly unless the annual membership fee/dues due to EDRG has/have been fully paid.
g) Any member who is unable to participate in a General Assembly personally may give a written proxy to another ordinary member or send a written proxy which must arrive in the hands of the Secretary by the start of the meeting concerned.  Such proxy must mention separately every proposal that is, or may be, subject to a vote, with a clear indication as to the way in which the member wishes to vote, in order that the proxy holder be entitled to vote thereon in accordance with instructions received from the member so represented.
h) Save where otherwise provided, the General Assembly shall decide upon all issues by a simple majority of those voting.  In the event of a tied vote, the chairperson of the meeting shall have a casting vote.  (See clause 3(l) of these Bylaws below)
i) Nominations for election to the Board shall be in accordance with the terms and conditions specified in Article 20 of the Constitution.
j) In any meeting at which it is duly proposed that any article of the Constitution is to be modified or amended, the quorum shall be two third (2/3) of the then number of ordinary members of EDRG.  Decisions in respect of the said articles shall require a two-thirds (2/3) majority of the votes of members present, or represented by proxy, and eligible to vote.  These conditions shall also apply to all matters pertaining to the dissolution, liquidation or merger of EDRG.
k) If a quorum cannot be obtained, another General Assembly may be convened within two (2) months at which decisions may be taken, regardless of the existence of a quorum, on all matters affecting or concerning the affairs of EDRG by simple majority of those voting and/or represented.
l) The General Assembly shall be presided over by the Chairperson of the Board of Directors or in his/her absence, by the Co-chairperson or, in the absence of both, by any other member of the Board, as agreed by those Directors present.

Bylaw 4     Board of Directors
a) The Board shall decide on all matters of EDRG which, in accordance with the law, the Constitution or these By-laws, do not fall within the competence of another body.
b) The Board shall have the general charge and responsibility for and over the property and affairs of EDRG.
c) The number of Directors shall be eight and each Director shall be an ordinary member of EDRG.
d) There shall be not more than three Board members from any single country, serving on the Board at any one time.
e) Directors, when elected, shall serve for a term of four years and any Board member may stand for re-election only once in the same capacity.  After two terms of office, the Director must stand down for at least one calendar year before again being eligible for election to the Board, unless he/she is nominated for a different capacity.
f) Between each meeting of the General Assembly, the Board shall manage EDRG's affairs by way of meetings, correspondence, telephone, fax and e-mail.
g) The Board shall represent EDRG regarding any third party and before the public.
h) The Board shall meet at least once annually and report through the Chairperson to the membership at the General Assembly.
i) The "Officers" of EDRG (Chairperson, Co-chairperson, Secretary and Treasurer) shall be elected by the ordinary members as part of the election of Board Directors at the Annual General Assembly.
j) Routine day-to-day matters shall be carried out for all legal and organisational purposes by the Secretary, or by any member of the Board.
k) Collection of fees, receipts of grants, payment of accounts and all other financial transactions of whatsoever nature shall be carried out by the Treasurer, having due regard to the instructions received from the Board in this respect. 
l) Alternatively, the Board may decide that any or all of the responsibilities of the Secretary or the Treasurer (except the supervisory role of the Treasurer) may be carried out by some other person or persons whose activities shall be agreed in advance and controlled by the Board. 
m) The Board may appoint sub-committees (which may be standing committees) from amongst the ordinary members.  The Board may delegate its powers to these sub-committees.  The Board shall limit the powers and functions of the sub-committees, as it deems fit, by separate regulations.  These regulations shall describe the goals, procedure, timetable and the manner whereby the results shall be reported directly to the Board.  The Board shall ratify all decisions of such sub-committees prior to implementation.
n) The Chairperson of the Board shall be an ex officio member of all sub-committees created in accordance with the preceding sub-clause and at least one Director shall be a member of each sub-committee.
o) Unless otherwise stated, resolutions of the Board at its meetings shall be adopted on the basis of a simple majority of the members present.   In the case of an equal vote the chairperson of the meeting shall have the casting vote.
 

The Board shall be responsible for:
p) Developing and supporting the scientific projects of the EDRG including but not limited to the review and approval of research protocols, principal investigators, co-principal investigators and steering committees for these research projects;
q) Reviewing and approving the appointments of the chairpersons and members of EDRG sub-committees. If such sub-committees are not created, the Board will be responsible for their functions, as described under Article 11 of these bylaws.
r) Formulating and maintaining standards for the EDRG regarding the conduct of co-operative research, clinical trials, publication policies, and conflict-of-interest guidelines;
s) Overseeing the programme and activities of the EDRG including its General Assemblies and other administrative and scientific activities,
t) Formulating and maintaining current and accurate listings of ordinary and associate members,
u) Corresponding, negotiating and implementing relationships with any other bodies.
v) Proposing and overseeing the assessment and collection of dues, fees or surcharges for the EDRG

 Bylaw 5      Auditor
An annual audit of the Treasurer's books and records, in respect of the income and expenditure account and the balance sheet, shall be carried out by an independent Certified Public Accountant or a recognised auditor with equivalent qualifications.  The reports shall go directly to the Board and the audited accounts for each financial year shall be published in the papers for the next following General Assembly.

 Bylaw 6      Bank Accounts
The Treasurer shall operate the bank accounts of EDRG.  Any sums drawn on the bank accounts of EDRG and not exceeding the sum of One Thousand Euro (€1,000) shall require the signature of only one of the following, namely, the Chairperson, Co-chairperson, or Treasurer.  Any sums drawn on the bank accounts of EDRG and exceeding in value the sum of One Thousand Euro (€1,000) shall require the signature of any two of the above persons.

 Bylaw 7     Expenditure
a) All financial transactions shall be carried out, unless otherwise agreed, by the Treasurer according to the instructions received from the Board.
b) Routine expenditure described in the budget, including mail, telephone, faxes, consumable items and all other purchases reasonably necessary for the proper functioning of the office and the treasurership shall be undertaken with the approval of the Treasurer.
c) Individual claims for travel and lodging expenses for meetings, congresses and the like shall be approved by an Officer who did not incur or share the expenditure involved.
d) Expenditure for the preparation and the printing of any written materials. The Board must approve all such materials and its cost before expenditure is incurred.
e) Direct coverage by an external party of the costs and/or expenditure mentioned in the preceding sub-clause shall not require the approval of the Board, although the material itself still must be approved.
f) All grants or donations given to EDRG for general support or the sponsorship of a specific event or project must be received by the Treasurer who will then, in agreement with the Board, proceed to apply such funds as intended by the sponsor or donor. 

Bylaw 8      Election and Tenure of Board Members
The term of each of the Board members of EDRG shall commence on their election at an Annual General Assembly and end at the beginning of the election process of the Annual General Assembly four years later.  The Board may make nominations for any or all vacancies.  Any ordinary member may be proposed and seconded by two other ordinary members.  All nominations, accompanied by short biographies, shall be circulated to ordinary members in accordance with Article 20 of the Constitution.   

 a) The Chairperson shall be appointed as provided in Article 20 of the Constitution but no individual may serve in that capacity for more than two consecutive terms.
b) The term of the Co-chairperson shall run concurrently with that of the President.  No individual shall serve as Co-chairperson for more than two consecutive terms
c) The term of the Secretary need not run concurrently with that of the President.  No individual shall serve as Secretary for more than two consecutive terms
d) The term of the Treasurer need not run concurrently with that of the President.  No individual shall serve as Treasurer for more than two consecutive terms
e) No Board member without the position of an Officer shall serve in that position for more than two consecutive terms

 Bylaw 9     Officers' Powers and Responsibilities
The Officers of EDRG shall have such powers and authority as may be conferred and such duties as may be prescribed by the Board from time to time, including, without limitation, the following powers, authority and duties:

Chairperson:  The Chairperson shall preside at meetings of EDRG and of the Board and shall make decisions within the existing policy as approved by the Board.  The Chairperson will plan, organise, direct and co-ordinate the activities of EDRG, delegating when he or she thinks fit, to ensure that the objectives of EDRG are attained.  The Chairperson will make a report to the Board and to the general membership at their meetings outlining the past operations of EDRG.  Among each Chairperson’s responsibilities shall be the appointment of the chairpersons and members of any sub-committees.  The Chairperson may invite sub-committee chairpersons and/or the organisers of scientific meetings, or other relevant persons to attend meetings of the Board when it is deemed appropriate.

Co-chairperson:  In the case of death, disqualification, removal, resignation or absence of the Chairperson, or of his/her inability from any cause to act, the Co-chairperson shall perform the duties of the office of Chairperson.  He/she shall also be involved fully in the direction and co-ordination of EDRG activities, working closely with the Chairperson.  He/she shall be expected to succeed the Chairperson (subject to the election process) at the end of that Officer's tenure.

Secretary:  The Secretary shall record the minutes of Board and General Assembly meetings.  The Secretary shall implement any contractual relationships of EDRG with other bodies.  The Secretary shall also be responsible for giving notice of and attending all meetings of EDRG, to conduct all correspondence and to execute all orders, votes and resolutions not otherwise committed; to keep a list of members of EDRG; and generally to devote his/her best efforts to forwarding the business and advancing the interests of EDRG.  At the expiration of his/her term of office, the Secretary shall deliver over to his/her successor all books, records and other property held in his/her capacity as such.

Treasurer:  The Treasurer will be responsible for collecting grants, fees, annual dues and subscriptions and for keeping an account of the monies received and expended for the use of EDRG.  He/she shall make disbursements against vouchers approved in writing by such Officers of EDRG as the Board may from time to time designate; and deposit all sums received in a bank or banks designated by the Board.  With the assistance of the Chairperson and Co-chairperson, the Treasurer shall also prepare the annual Budget of EDRG for ratification by the Board.  At the expiration of his/her term of office, the Treasurer shall deliver over to his or her successor all books, records, monies and other property held in his/her capacity as such.

 Bylaw 10      Amendments
In accordance with Article 19 of the Constitution, proposed amendments to the Constitution must be approved by the ordinary members in the manner described in that Article. 

Bylaw 11     Associate Membership
Individuals who collaborate with EDRG, but do not qualify for ordinary membership, and organisations which support the aims of EDRG, may be considered for associate membership in accordance with Article 6 of the Constitution.  Such associate members shall receive all official material distributed to the membership and may attend meetings but shall pay no dues and shall not be eligible to vote or to hold office. 

Bylaw 12      General Procedures
All business meetings of EDRG shall be conducted in accordance with, and having due regard to, the terms of the Constitution and these Bylaws.  The working language of EDRG shall at all times be English.                                  

30 January 2003